tag:blogger.com,1999:blog-2173268137345629840.post456547358762585377..comments2023-10-23T10:30:02.825-07:00Comments on Bowl of Soul...: Painful Mistakes with Gluten ~Bowl of Soul Galhttp://www.blogger.com/profile/03976007424484487886noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-2173268137345629840.post-53653186726745298282008-08-06T17:01:00.000-07:002008-08-06T17:01:00.000-07:00I have not been diagnosed with Celiac or Gluten in...I have not been diagnosed with Celiac or Gluten intolerance yet..waiting on the gene testing results as we speak but for many many years(12+) I have been suffering and going from one dr to another. It has gone from the severe stomach pain to near syncope and unbalance(feeling like am falling)until I put myself on a bland diet....then I will be fine until I eat regular again and then am sick for months on end..muscle weakness, fatigue, nausea and just a total feeling of unwell. Just found out about Gluten and Celiac 4 months ago and have been trying to maintain a total Gluten Free diet. The only hard part for me is not knowing what has hidden gluten but unknowingly I was putting myself on a gluten free diet everytime I felt bad over the past 12 years and explaining to each GI doc I saw that eating bland helped me and going back on a normal diet got me sick and not one suggested that I do the biopsy of the small intestine...they all thought it was a cardiologic or neurologic issue. Now that I am on the Gluten Free and asked about the Celiac the GI docs now want me to go back on Gluten to do the test and that I will not do because of how bad I feel and how long the bad feeling lasts.<BR/><BR/>Thank you so much for this blog...just found it and will continue to read itRhonahttps://www.blogger.com/profile/00046115824446660621noreply@blogger.comtag:blogger.com,1999:blog-2173268137345629840.post-38308546545606724702008-07-22T20:56:00.000-07:002008-07-22T20:56:00.000-07:00I don't know if I've had this happen to me yet. I'...I don't know if I've had this happen to me yet. I've only been diagnosed for about 14 months now. All I know is I never really felt great most of my life and since trying to keep the gluten out, my health has improved.<BR/><BR/>I get depressed when I try to eat out. I haven't had any trouble at PF Cheng's. Got depressed at Green Onion though as I always seem to go there when they don't have a gluten free soup out. Sometimes I really get sick of eating nothing but salads when I go out.<BR/><BR/>The Whole Foods prepared foods area had me almost in tears the other night. I wanted some chicken really bad but everything they had out (besides the cubed stuff) had some sort of wheat-based sauce.<BR/><BR/>My husband felt so bad that there was hardly anything there I could eat (this was later in the evening and most good stuff was gone) that he said we won't eat there anymore.<BR/><BR/>I guess staying home might be the best options but it's gets depressing due to the loss of the social aspect of it. Oh, well, guess we will save money!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2173268137345629840.post-80610515435034704372008-07-16T09:58:00.000-07:002008-07-16T09:58:00.000-07:00Don't feel too bad about getting exposed to wheat....Don't feel too bad about getting exposed to wheat. It happens sometimes. I just consider that eating out is risky for celiacs. Last November I got a bad reaction from a meal at PF Changs that I ordered as gluten free. On Cinco De Mayo I got sick from a Jose Cuervo Margarita mix. None of the ingredients looked suspicious. But I think now that the citric acid was derived from wheat. No warning on the label.<BR/><BR/>Depending on how much wheat is involved, I am sick from a few days to a month. Very debilitating with cramps, diarrhea, fatigue. My brain goes into neutral. Moving around makes it worse so I spend alot of time in front of the TV with a heating pad. Sometimes there is heartburn and nausea. Vicodin can be a real blessing, but it puts me out.<BR/><BR/>Towards the end, the cramps ease off, and I get flu like joint and body aches. Lastly, a migraine like headache. You are right - it's like being poisoned.<BR/><BR/>In my case, the symptoms don't start until after breakfast the following day.<BR/><BR/>I have had a lot fewer problems since I quit eating out so much, but it's not great for a person's social life.<BR/><BR/>Take care. I enjoy your blog.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-2173268137345629840.post-24635206161079646942008-07-13T15:16:00.000-07:002008-07-13T15:16:00.000-07:00Hi.It takes me quite a while also. I also have th...Hi.<BR/><BR/>It takes me quite a while also. I also have the family get sick sometimes so we chalk it up to "stomach flu" Mine is mostly mental. Fatigue, irratability, and some depression. And they really do not understand at work!!<BR/><BR/>Try to be as careful as you can!!Anonymoushttps://www.blogger.com/profile/10595133415462040158noreply@blogger.com